Hunting Forum

Haven't said anything before here, but my daughter is having an MRI tomorrow to try to determine why she has been having seizures.  These have been happening for a while, my wife thinks for a year or more.  They look like 3 second snapshots when she simply is not there.  She may be talking and suddenly seize up wide eyed, mouth open, and stuck like that.  Exactly 3 seconds later, the light comes back on and she has no recollection she did it and may continue where she left off or may just be unaware what she was doing.  She will drop things she is holding when it happens as well, and sometimes her hand will suddenly shake.  I had experienced it many times before with her but didn't know why she just seemed to not be paying attention or something.  Sadly, I often got mad because I though she was just ignoring us or not paying attention.  My son also knew they were happening but didn't know what it was.  Anyway, my wife only recently told me about them and had to point out to me when they happened and what they looked like before I recognized what was happening.  Docs so far have done sleep tests and found she had 15 measurable seizures during sleep even and saw them happening in the office interview even when my wife didn't see them.  They are becoming more frequent now so we are having the MRI done to see what is in her brain.  Ideally, these can be treated with some diet changes as we learned gleuton causes these in some kids.  We don't want to do medication if possible.  My wife does tests on many of these same drugs and said "I'd never want anyone I love on these drugs."  So, we just have to wait for tomorrow's tests to be over and see what she has going on in there.

shiloh, i am sorry for these episodes! my prayers are on the way!! they allmost sound like grand maul sizures(spelling) my niece with c.p. get them, but they can last longer than that! either way thats no way for anyone to grow up!! if you don`t mind my asking, how old is she? if you don`t mind i will add her to my prayer chain? i will prayer for you and your wife this must be a strain as it would any parent!! my prayer and sympathy goes out to you and your wife!

holy crap...im so sorry shiloh....my prayers go out to you and the baby girl....If an any way I can help, let me know.Maybe we as a group can gather monies for her..I hope everything works out with the MRI...god bless you and your family.

Prayers are sent.

Said a prayer for Lil' Shi.
God hears it and will honor His word, because we ask!

Patrick they are NOT grand maul at all. Todd you know prayers are on the way and I will ask that our church memebers pray as well. If there is anything I can do you know that all you have to do is contact me and you know how. I have wtinessed the type you are describing and they can be caused by diet and are usually either treated with meds for a while and most times they will stop as she gets older. This is something that you are going about the right way as she needs to be diagnosed first and then a treatment program can be decided upon.

dawg i certainly hope not! i just said "it sound like what my neice gets"

Prayers on the way...

Prayers are sent.

Wow, sorry for her and prayers are on the way! Good luck to you all!!

Praying for your daughter and all of you Todd.

Todd, I'll be thinking of "lil Shi" and all of you, hope the MRI shows the problem so it can be dealt with.

Thanks, Pards. My wife as most of you know works in Psych-studies dealing with many of these sorts of drugs so she knows what to look for. She had been telling the Pediatrician for a year about them but the Dr. didn't see any problem, and her teachers had not noticed it either until pointed out specificaly what to look for. Only recently did I figure it out as them have become more frequent. Thankfully from what I am hearing these are fairly common and kids usually out grow them, but they can be signs of other problems that need to be addressed. That's what the MRI hopefully will show is nothing to worry about. But it can cause her problems and embarrassment I want to avoid. She play violin and I have heard here stop suddenly before and drop the bow a few times so i think they happen when she plays sometimes. If it happens during a recital it would really tramatize her. Don't even want to think about her reaching 16 and still having them because it would preclude her from driving. She's 9 and likes science-stuff so is more interested in today's MRI than anything else but I know she is a little scared as well. This morning we found her on the couch real early instead of her bed so she was not able to sleep last night I think.

Prayers for the little one, and your family Shi

Not that it'll help, but I've had MRI's and there's really nothing to it. Just lay there. May be told to hold her breath or turn her head one way or the other but absolutely zero felt sensations. Nothing to it. She'll be fine. Of course I understand that she probably doesn't quite see it that way... ;-)

Shi, that sounds a little like my daughter. Her problem is called schitzencephaly and has nothing to do with diet but a small congenital "split" in the brain. I understand Mrs. Shi's concern over meds, but my daughter takes a generic version of a drug called  Trileptal. She was having petit mal seizures (blank times) as well. Since she started the meds, (7 years ago) no problems and shes pretty much like any normal 19 y/o. Good luck w/your girl, our thoughts are with you.

Done.

Said one for ya Shi.

May the doctors find out exactly what she has, and return here to you in perfect shape. My thoughts are with you.

She did fine.